"Things to know if you get cancer," from a patient five months in
Practical advice from someone in treatment, plus a long thread of readers adding their own.
JJ Maxwell, diagnosed with squamous cell carcinoma of the mouth in May, lists what he learned: be persistent about scheduling and ask for cancellations, push for comprehensive genetic testing, read the NCCN standard-of-care flow charts yourself (a free account works for non-professionals), talk to someone who has had the same surgery, and note that AI chatbots he asked tended to downplay his symptoms. He later added a tip from a commenter: if you are within a few hours of a major cancer center, go there; he says the biggest benefit he saw at MD Anderson was speed.
It was the most-upvoted story on Hacker News this week.
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National Comprehensive Cancer Network
After exploring Things to know if you get cancer (2026 Edition), the group behind the guidelines he recommends is National Comprehensive Cancer Network.
An alliance of 34 US cancer centers, most of them National Cancer Institute comprehensive centers, which publishes its own peer-reviewed journal.
Wikipedia · Wade · 5 min
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